It's very late and we've had a busy weekend but I wanted to get this out to keep you all updated.
I received the call from UF Friday! The nurse was great to work with and was patient while I asked my 1000 questions. I have a much better understanding and am excited for Josh to get down there.
We will be traveling to Gainseville May 27th for his clinic appointment. At this time we'll get to meet the doctors who will be treating Joshua. I was very happy to hear we'll also meet with a pulmonary hypertension specialist. They will do his work up, chest x-ray, etc also that day. We should be there about 4-5 hours.
The next day we will travel back down there unless we stay over night. He will have his surgery for the heart cath that day. We will not know until we speak to the doctor as to what extent or exactly what type of cath will be done. The nurse was very kind to answer all my questions about the different types, which I won't go into here, but I feel very comfortable in my understanding of them and am ready to get face to face with the heart specialist there. I did find out also that the doctor who will be doing Josh's cath is the head of the cath lab there. That makes me feel much better.
If they are able to repair the PDA, he will be kept overnight. This is my prayer. I pray they will be able to fix everything and keep him to watch it.
Lord, please give these doctors wisdom to do what is exactly right for Joshua, specific to him. I know you already know exactly what the plan will be and you have it all under control.
Amen and good night.
Sunday, May 3, 2009
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