Monday, July 20, 2009

We're baaaacckkk!!!!

We are still alive. Really.


Many of you have let me know that I haven't updated in a while. Here's why.

My family moved into my sisters house for 12 days to take care of our grandpa while my sister and her family were on vacation in Missouri. He lives with her and requires light nursing care and just someone to check on him periodically, get his meals to him, and put him to bed.

It was A LOT for me. I'm such a wimp. I just don't do bodily fluids well. Of any kind, from anything or anyone. Between Grandpa, her three boys, four cats and a dog, she's always said her life is one big bodily fluid and she was right. I was not made to be a nurse, I'm sure of it.

Pray for her.

I don't know how she does it! And she even had home health care come every morning to get him up, clean him up, do his meds, and straighten his place up... just for me. I love her.

Anyway, it was an interesting 12 days. Lots of time for pondering and perspective.

Even more so than usual, I am forever grateful for Joshua. He was a HUGE help to me with Grandpa. He loves just sitting up there with him. Sometimes they talk. Sometimes they just sit. And watch TV. LOTS of TV.

(Just how many hours of Fox News or Deal or No Deal can one watch, really?)

Joshua and Grandpa have an unusual relationship. They really do love each other. Grandpa thinks Joshua is just wonderful. I think it's because Josh is the one who spends the most time with him just sitting with him. Joshua laughs at his jokes. These are the same jokes we all have heard as long as we can remember. But Joshua still laughs. He's great like that.

So, with all that being said... Joshua was able to do something I'm not sure anyone else would've been able to do.

He got Grandpa to do this... (sorry for the picture quality. It's from my cell phone and there are too many windows!)

And then he even did this...

Joshua would push him in his wheelchair around the pool table. Sometimes he would shoot sitting down, several other times he would stand up! That is big for Grandpa. He almost beat Joshua but Josh won!

We did enjoy our stay at her house for the most part. We really missed our own beds, and of course Mick! Remember him???

But we sure did enjoy this...

We did take full advantage of their pool and had friends over to swim while we were there.

Peter even brought his guitar to entertain us!! Fun times with friends!

We had a fish fry with the fish that John and Chad caught while deep sea fishing. I would post pictures but for some reason, the men don't think about taking pictures while they are bringing in their big catch!!!

We had shark, kobia, sea bass, and snapper.

It was yummy!!

I guess this post is plenty long now. I just wanted to let you all in on what we've been doing lately. More to come.

Wednesday, July 8, 2009

News this week...

Joshua started his full dose of meds last night. They came a day earlier than expected.

The only bad thing about that was we were all outside, Mick included, and he about attacked the Fed-Ex lady. She jumped back in her truck and shut the door. I about died! Our fat, lazy dog NEVER does that! He charged her like he was gonna eat her up. Anyone who knows Mick knows that he is just about comatose most of the time. See how much he was helping me paint Joshua's room ...

I was really embarrassed for her and just hope she doesn't red-flag our address and then not deliver to us anymore!

Here is another favorite shot of Mick, just for fun... Does he really look like a mean, vicious, attack dog??? I didn't think so!

So after she left, we put Joshua's meds together for the week. We'll be looking for any additional side affects from this drug. He's had a few headaches and some dizziness up to this point.

Other than that we're all doing well.

Although, I have forgotten to let you all know that I failed my M.D. test. ;-)

John does not have a rotator cuff tear. It's a labral tear. The shoulder joint has a cuff of cartilage called a labrum that forms a cup for the end of the humerus to move in. That cartilage is what he's torn.

He started physical therapy last week in hopes that it will be enough and he can avoid needing surgery. Only time will tell.

Also, please keep my biological dad Harry in your prayers. He had a stroke last weekend. Please pray for him. He is not able to swallow or walk at this time.

Thanks again for your prayers and calls and words of comfort for our family!

Thursday, July 2, 2009

First Clinic Day

We left the house at 7am and got home at 6pm. Long day.

It appears by the results of the ECHO that there is no improvement with the meds at this time. We've been 3 weeks at half dose.

So the plan is to go ahead with the full dose of Tracleer starting with the next delivery (which should arrive next week) and then return to UF next month for our second clinic day.

Joshua asked several questions. He wasn't really happy with the answers but it's for his best interest. Right now he is not allowed to travel by airplane, be in high altitudes, or ride roller coasters. All these were questions he asked.

He is allowed to be out and about walking or swimming, just not alone. He can ride his bike if he's being cautious and listening to his body. He cannot exert himself.

He wasn't so sad to hear that he still cannot be mowing the yard! Alex on the other hand, isn't so excited to hear that news.

So we wait another month to see if the meds are going to positively affect his pulmonary pressures.

Thank you for your prayers. Please continue to pray for us to accept whatever God is doing with Joshua through all this.

Wednesday, July 1, 2009

Gainesville Tomorrow

That about says it all.

Tomorrow is our first clinic day in Gainesville. We will leave early in the morning to get kids delivered and then off to the swamp. We'll be there all day.

The day will consist of a 6 minute walk test, lab work, an EKG, an ECHO, and then meet with the doctor.

We'll hopefully find out if the medicine is doing anything, if it's affecting his liver at all, and then wait for our next month's delivery to arrive soon. This next delivery will be the full dose. I'm wondering if they will start any other meds.

Joshua and I have compiled a list of questions for the doctors.

More to come soon.