Wednesday, April 14, 2010

Joshua Update #2

We're just sitting here watching him sleep. He was able to eat lunch and use the bathroom (all while lying flat mind you), and he's back asleep now. He had to lay flat for 4 hours after the cath. We brought his CPAP machine so he could have it during surgery and recovery.

We had a planned visit with his pulmonologist while in recovery. I was so happy she was able to be here to witness for herself what he does while he sleeps. It looks like he's gasping for air, or choking, even while wearing the CPAP. So, she ordered a new sleep study to be done saying the CPAP is not set high enough for him and maybe that will help him want to wear it more. (He hasn't been good about wearing it every night.) We also have to have the medical supply company come out and adjust his machine.

So while we've been waiting here, we have already scheduled the sleep study (Monday night), and the respiratory therapist will be at the house tonight to adjust the machine.

We also have a follow up appt in two weeks with our regular cardiologist at the pulmonary hypertension clinic here at UF to discuss where we go from here.

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