GOD IS GOOD! Joshua's medicine in on the way!!!!! We've had our phone counseling from the pharmaceutical company and they have all Joshua's info so they are Fed-Ex'ing (can I verb that?) the package overnight. We'll have it tomorrow for him to start his meds.
We are hoping these meds will improve his ability to exercise, improve shortness of breath, and stop this disease from progressing.
He starts on half a dose, then will go to a full dose the next month.
They don't expect to see results until he's been on the meds 1-2 months.
He will have monthly blood tests to check liver function. These have to be turned into the drug company before they will send the next months dose. I'm thankful they do reminder calls 2 weeks before he is to run out of pills to help us remember to get these done and get the next month's meds on the way.
Thank you for your prayers. So far our insurance is covering this expensive medication (average $3000/month)!! Praise God!
Please feel free to leave a comment of encouragement for Joshua if you'd like. You can also email me if you'd like. My email is under the About Me section in my complete profile.
Proverbs 3: 5-6 "Trust in the Lord with all your heart and lean not on your own understanding."
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An interesting mix of chaos and quiet all wrapped up in one happy family!! Mostly chaos.
Our Verse
Isaiah 55:8 "For my thoughts are not your thoughts, neither are my ways your ways, saith the Lord."
About Me
- John and Michelle
- We are a loud, loving, happy family with four kids, a silly little dog (who was supposed to be a german shepherd), and a neurotic black cat. Ahhh... blessings abound!! We are also learning to live with our son's terminal diagnosis of Eisenmenger's Disease, which is a combination of a heart defect (PDA) and PAH (Severe Pulmonary Arterial Hypertension.)
where are you?
2 comments:
God is good, indeed. You've seen it over and over again these past weeks and months. It was so-o-o good to see you and hug on you all a bit:-)
Joshito,
Dude, the Wilsons love you a lot, and we're all praying for you. You're such a freakin' cool guy, and we all miss you. I keep tryin' to talk your old man into drivin' west for a couple of hours, but he says he has to "work." Y'all come see us soon.
Marshall
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