Diagnosis - from John

Good Evening,

Long 2 days just wanted to get this out so you all can know where we are with Josh. All I can say is WOW info over load, so easiest way to let you all in, is check out the two web sites below and we will be back in Jax on Wednesday. He's been diagnosed with Eisenmenger's Syndrome.

http://www.cachnet.org/managing_sec15.html

Treatment for people with Eisenmenger's syndrome is aimed at controlling symptoms and preventing complications. Medication is the primary treatment option. Surgery to repair the defect once Eisenmenger's syndrome has developed is not possible. Heart and lung transplantation or lung transplant are options for some people with Eisenmenger's syndrome.

http://www.tracleer.com/ This is the first drug we are going to try. May not work but have to try before moving on to next option.

JOHN!