Tomorrow is our appointment in Gainesville. We are not seeing the normal clinic this month. They have given us a two month span this time!!
We are however still going to UF to see an ENT for the first time. After seeing the pulmonologist last month, they decided they want us to see an ENT regarding his tonsils. They are quite impressive and under normal circumstances, would probably be taken out.
However, I am under the impression Joshua is not a surgical candidate so we'll see what they have to say.
This appointment will determine what we'll do with the CPAP treatments as well.
Thanks for your prayers! Each trip to UF is just a reminder of reality with this disease. Have a great week!!!
About Me
- John and Michelle
- We are a loud, loving, happy family with four kids, a silly little dog (who was supposed to be a german shepherd), and a neurotic black cat. Ahhh... blessings abound!! We are also learning to live with our son's terminal diagnosis of Eisenmenger's Disease, which is a combination of a heart defect (PDA) and PAH (Severe Pulmonary Arterial Hypertension.)
where are you?
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