We left the house at 7am and got home at 6pm. Long day.
It appears by the results of the ECHO that there is no improvement with the meds at this time. We've been 3 weeks at half dose.
So the plan is to go ahead with the full dose of Tracleer starting with the next delivery (which should arrive next week) and then return to UF next month for our second clinic day.
Joshua asked several questions. He wasn't really happy with the answers but it's for his best interest. Right now he is not allowed to travel by airplane, be in high altitudes, or ride roller coasters. All these were questions he asked.
He is allowed to be out and about walking or swimming, just not alone. He can ride his bike if he's being cautious and listening to his body. He cannot exert himself.
He wasn't so sad to hear that he still cannot be mowing the yard! Alex on the other hand, isn't so excited to hear that news.
So we wait another month to see if the meds are going to positively affect his pulmonary pressures.
Thank you for your prayers. Please continue to pray for us to accept whatever God is doing with Joshua through all this.
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